This July 26th marks the 35th anniversary of the Americans with Disabilities Act (ADA), a piece of civil rights legislation that fundamentally reshaped our nation. Signed into law in 1990, the ADA was a hard-won victory of the disability rights movement, which, much like other civil rights movements, fought for decades to dismantle systemic barriers and challenge discriminatory practices. As we celebrate this milestone during Disability Pride Month, we reflect not just on the letter of the law, but on its spirit. This spirit champions equity, inclusion, and the inherent dignity of every individual.
The Original Intent: A Foundation for Equity
The ADA was designed to be a "clear and comprehensive national mandate for the elimination of discrimination against individuals with disabilities". Its purpose was to ensure that people with disabilities have the same rights and opportunities as everyone else in all areas of public life, including jobs, schools, and transportation. The act was born from the understanding that society had historically isolated and segregated individuals with disabilities, and that these forms of discrimination were a "serious and pervasive social problem". The initial focus was often on visible barriers: the ramps, accessible restrooms, and telecommunications relays that were sorely needed.
Evolving Understanding: From Visible to Invisible
A crucial question to ask is whether the ADA was intended to be as broadly applied as it is today. While the original text was comprehensive, the cultural conversation has evolved significantly, especially in our recognition of "invisible disabilities." These can include everything from chronic illness and mental health conditions to neurodiversity and sensory processing disorders.
The law itself evolved to reflect this growing awareness. In 2008, the ADA Amendments Act (ADAAA) was passed to broaden the definition of disability, pushing back against narrow court interpretations and ensuring protections for a wider range of individuals, including those with episodic conditions. This evolution acknowledges a profound truth: barriers to access and inclusion are not always physical or visible.
This journey is beautifully symbolized in the Disability Pride Flag. Its design includes distinct colors to represent different experiences within the community: red for physical disabilities, gold for neurodiversity, blue for psychiatric disabilities, green for sensory disabilities, and a white stripe specifically for invisible and undiagnosed disabilities.
Disability Pride: A Movement of Identity
This brings us to the heart of Disability Pride Month. First officially celebrated in July 2015 to mark the ADA's 25th anniversary, this observance is about shifting the narrative from one of overcoming deficits to one of celebrating identity. It challenges ableism and the notion that people with disabilities should conform to a non-disabled world. It is a powerful declaration that every person’s experience is valid and worthy of respect.
Here in New Mexico, this spirit is alive and well. Organizations like Disability Pride New Mexico are dedicated to "championing disability pride through community engagement, inclusive leadership, awareness, celebration, and advocacy". Their work, along with local events like the inaugural Santa Fe Disability Pride Parade, demonstrates the living legacy of the ADA in our communities.
HSLIC’s Commitment: Living the ADA’s Values
At the UNM Health Sciences Center and here at HSLIC, these principles are not just abstract concepts; they are central to our mission.
Our commitment extends to:
- Assessing and identifying opportunities to improve accessibility within all of HSLIC’s physical and online spaces.
- Aligning our efforts with the broader Health Sciences Center to build a more inclusive culture for our patrons and employees.
- Ensuring our collections and resources provide opportunities for growth and success for all members of our diverse community.
By championing equitable access to health information and creating an environment where everyone feels they belong, HSLIC strives to embody the core values of the ADA. We believe that fostering health equity and celebrating Disability Pride are inextricably linked. As we honor the 35th anniversary of the ADA, we recommit to this vital work, celebrating the rich diversity of our community as one of its greatest strengths.